A small request... please

I have a small request and it won't take up much of your time.

Now that Emmah's spirit has left her physical body behind and has completed it's journey "home" I would very much like if you could all take a moment and reflect on Emmah... whether you knew her personally or not. Let us know how she touched/affected or made a difference in your life.

I especially would like to hear from those of you who know/knew her, what your fondest memory or memories of her are. Funny stories and what you remember her likes and dislikes to be (no matter what they are) and what word/words you would use to describe her.

In order to keep all of those thoughts in one place, please, please use this link only for this purpose only.

Thank-you

KEIYH

03 July, 2009

Update(s)...

My apologies to the faithful few that have been checking in to see what (if anything) I've written about.

... lately not much of anything.

The 22nd of June marked the 6th year of my dad's passing.

The 30th of June marked the "Will you still need me, will you still feed me... ?" year of my mom's birth. (For those unsure exactly how old that is... type that line into your search engine.)

Mary Mary Quite Contrary... oh how our garden(s) grow. Our home "garden" is growing fine and (according to Dave our befriended farmer) so are our "crops". We are planning on taking a spin on out to see them tomorrow AND catch a fireworks show out there from his farm. Skydive Chicago is right by him (his property and their property butt up to each other... or very close to it) and according to Dave, they (Skydive Chicago) put on one heck of a show. When we were out to plant, he invited us to watch the show with him and his family. So the plan is to do that... unless it's raining... in which case we'd stay home.

And last, but not least, Emmah

She's done with chemo... for now. We got a call and were told that there was an opening for a Phase I trial did we want to enroll? Neither Julie nor myself are exactly chomping at the bit to get her on a trial especially since we don't know where Emmah is at this point. The last set of scans that were taken were back in February. She needs to be worked up.

It's no picnic trying to sort out all the trials because there are all these stipulations and qualifications... understandably so since these are studies and you need that to control the study... but at the same time, we as parents want what's going to be best for Emmah. The most bang for the buck. It's not as straight forward as well yes... or no not this one. We have to consider things like toxicity, quality of life, efficacy (and in some ways most of all) will she not be able to participate in another (potentially more promising) study because she's precluded since she had drug "A" in study "A" and to be able to participate in study "H" you can't have had drug "A".

It's dizzying...

Overall... Emmah is doing well though mental fatigue is taking it's toll. (on all of us) Her hair is sprouting again... that's always encouraging and uplifting. Not that hair is all that, but being an 8th grade girl... having hair is a lot.

Happy 4th y'all!

KEIYTAP

No comments: