Getting reacquainted with an old friend… room #419… that’s where we are now having been moved down the hall yesterday.
All systems are go for the rescue today… Julie’s even gonna check it out and take a front row seat for this one… it’s must see thera-py. We were told yesterday that it wasn’t going to take place until 1pm. So that’s a tad later than the last one… the last one was @11am. Seems it's a busy day for the stem cell team having three transplants/rescues taking place… Emmah being one of them.
Just watching Emmah these past few daze, she seems to be in a better place than when she was before going into the last one. Even though this go round of chemo was for 96 straight hours… she still has had three days to recoup whereas the last one had a 6 day chemo schedule which only allowed a one day recoup period and it was moving day at that.
The food is still of marginal interest to her, so that is a plus. She is eating… somewhat anyway. I can only manage to get her to eat one meal a day, still not able to get her to nibble all day long. She’s not drinking like she needs to be… hopefully, that will change before too long. Proper hydration is really important and she doesn’t want to have to go home on the fluids again… we shall see.
She spent the weekend enjoying her birthday here at club CMH. The night nurses/nurse decorated her room while we were sleeping hanging little happy birthday signs and things of that nature. She didn’t seem too impressed, but then again, she was still getting her chemo when she awoke and saw it. To put in perspective, I was more excited/enthusiastic than she was… at least outwardly… that the chemo was done. She (understandably) goes through these phases of quietness… talking quietly, averting her gaze when talking and so on. It’s been that way as of late… my guess, and really this isn’t too hard to figure out… she’s grown tired of this whole ball of wax here… the whole process has gotten old.
Back to her birthday…
Once she came around and was out of her sleep stupor, a group of nurses and child life volunteers came in bearing gifts… even a singing of Happy Birthday… that even Dr. Tse got into too. After opening her gift bags, she was handed a personal size cake. Just when you think that the fun is all done, Uncle Brian showed up with a gift too… freshly bagged from Best-Buy… (just teasing UB) it was a game for her Nintendo DS. He hung around for a couple of hours and then was on his way. The visits didn’t end there though… grandma came out to visit too and she stayed for a couple of hours as well. Julie and Ana also came out and brought cards and food from home… which pleased Emmah. That was Saturday…
On Sunday, Julie came back out… this time will the rest of the clan. We all spent another few hours partying living large on high quality food stuff… McDonalds.
Not much else to tell… hoping the status quo doesn’t change… it’s been pretty mundane to this point. I will again post her daily counts on her blog page for those interested.
I for one can’t wait for the hospital sitting to be over… I’m shocked by how much all my clothes have shrunk over these past six months… everything ‘cept my shoes.
That's gonna do it for now, until the next time.
At times unwanted, but often are we uncomfortably thrust into living with it. To borrow part of a line from the movie Heartbreak Ridge, "You adapt, you overcome"...
In memory of Emmah ~ KEIYH
A small request... please
I have a small request and it won't take up much of your time.
Now that Emmah's spirit has left her physical body behind and has completed it's journey "home" I would very much like if you could all take a moment and reflect on Emmah... whether you knew her personally or not. Let us know how she touched/affected or made a difference in your life.
I especially would like to hear from those of you who know/knew her, what your fondest memory or memories of her are. Funny stories and what you remember her likes and dislikes to be (no matter what they are) and what word/words you would use to describe her.
In order to keep all of those thoughts in one place, please, please use this link only for this purpose only.
Thank-you
KEIYH
KEIYH
13 March, 2007
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2 comments:
Perhaps your clothing has shrunk from the dampness in the air....at least that's what your father always blamed his shrinking clothing on!! Tee Hee :)
Glad everything is progressing well. I had wanted to stop up to see Emmah but everyone at Heather's house has had colds/croup so I didn't want to bring anything in to Emmah. My thoughts and prayers are with you all everyday.
I'm off to Mesa on Thurs to meet Ryan for some Cubs spring training. will be back on Mon.
Love to all
Aunt Louie
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