and on and on and on... like the energizer bunny.
So as not to leave the left kidney feeling left out, the right kidney decided having hydronephrosis would be cool too. That's the bad news. The good news is that according to Dr. Clardy (the associate professor of pediatrics section chief, pediatric nephrology coordinator, inpatient pediatrics guy) her kidney function remains perfect as do the kidneys.
We might finally be zeroing in on getting a grip on her pain. Will we be home for the "celebration" of the new year? Not looking like it, but we will see what tomorrow brings.
We met with Dr. Cohn to discuss things and ask some more questions. One of the things she said is that we should consider getting on trials and not wait for "the one" we want to open up.
Ironically Julie talked with a doctor earlier in the morning and upon conclusion of that conversation we've decided on a clinical trial to put Emmah on. It is at MD Anderson in Houston. We just need to make sure that she qualifies. It is a tyrosine kinase inhibitor, they have a similar one here, but at this time she doesn't quite qualify and we are at the point that we feel like we can't sit around contemplating and cogitating any longer as to what to do. So we will be setting things in motion and heading on out to Houston possibly... provided that she qualifies and after working out the logistics.
KEIYTAP
1 comment:
Hi Jeff & Emmah,
Just want you to know that you are both in my thoughts today. Good to know that the kidneys are continuing to function normally. I'll say some extra prayers that you both get home for the new year.
Luv, Mom/Gramma
Post a Comment