A small request... please

I have a small request and it won't take up much of your time.

Now that Emmah's spirit has left her physical body behind and has completed it's journey "home" I would very much like if you could all take a moment and reflect on Emmah... whether you knew her personally or not. Let us know how she touched/affected or made a difference in your life.

I especially would like to hear from those of you who know/knew her, what your fondest memory or memories of her are. Funny stories and what you remember her likes and dislikes to be (no matter what they are) and what word/words you would use to describe her.

In order to keep all of those thoughts in one place, please, please use this link only for this purpose only.

Thank-you

KEIYH

28 February, 2009

Pathology Results are In

Conculsion: Neuroblastoma

While this is not the news for which we were hoping, we feel having the mass out of the pelvis gives Emmah a better springboard from which to fight.

Emmah made a second trip to the O/R yesterday to have her finicky port re-positioned (it is working much better now) and to have a bone marrow aspirate. Today, Saturday, she is scheduled for a bone scan. On Wednesday comes an MIBG scan, which is specifically used to highlight areas of activity involving neuroblastoma. We have our fingers crossed that the results from both tests will be unremarkable, similar to when she was diagnosed. This would be the silver lining in what has been a daunting week.

Emmah is up and moving more now and the Dr. offered up that she might be able to come home after the bone scan. I would have to say that Emmah was not nearly as excited at the prospect of coming home this time around as she was after the month long stay Aug 2006. Seems to have something to do with the noise level here at Camp Gudeman along with the bothersome issue of little hands getting into one's stuff. Apparently the hospital offers peace and quiet and security to belongings, which to this pre-teen are of considerable concern. Needless to say, we are hoping to reach a compromise with Emmah.

Please keep those positive thoughts and prayers coming. We are true believers in a multi-disciplinary approach to healing.

4 comments:

Anonymous said...

Sorry the results were not what you hoped, but she is a strong young woman and and she has a lot of people praying for her! We will keep the positive thoughts flowing over here for all of you!

Love,
Tracey Edwards

Anonymous said...

Julie, Emmah and Jeff - Thinking of you all and I know Heather would agree with Emmah about little hands getting in her teenage stuff.

Love Kim

Leslie and Anish said...

Julie, Emmah and Jeff,
Please know that you have lots of friends pulling for you and thinking of you each day.
All our best wishes,
Leslie and Anish

Anonymous said...

Dear Emmah and Family,
We are all praying for you here. You have overcome this once, and we are CONFIDENT you will do so again. You are a strong young lady so keep fighting and have faith.....

Love,
Deb & Kendyl